We went to the beach the other day. It was a beautiful, sun-drenched day of beachy fun, sand castles, splashing in the surf, running on the sand and hunting for the elusive (and hideous) geoduck, (pronounced “gooey duck”).
I packed a cooler with fresh summer fruits, individual serving sized packs of crackers, cheese, raw veggies and cold water. No sandwiches, no salads, just grab-and-go type snacks. Jenna enjoyed spot-on blood sugars in spite of being disconnected for a good portion of the time. I would just connect her long enough to give her a bolus for whatever carbs she consumed then promptly disconnect her, slip her pump back into the cooler (to keep the insulin happy and hidden from the hot sun) and send her off to run and play once more.
Watching Jenna play in the sand and surf with no pump strapped around her waist put a smile on my face. I know she enjoys being free of it, if just for a little while. Only the presence of her infusion site over her right deltoid told the tale of a child with more going on than the average 4 year old.
You can imagine what this did to my heart. I couldn’t help wondering if this was but a taste of what the next 15 years holds.
I told her that if she wants we could be sure her site is hidden the next time we go to the beach. She shook her head, then turned her scowling face toward the window, quivering chin and all. I knew that, for now at least, she didn’t want to discuss this any further.
It made me think of how wonderful it will be for her when she attends any event where type 1 diabetics of all ages convene. She needs to feel like she’s not alone. She needs to meet people in real life that have diabetes like she does. I fully intend to sign us up for a family diabetes camp next year. This year I tried but the camp filled quickly and we were unable to secure a spot. But next year I’m all over it, come hell or high water. If I’m not the first one reserving a spot I’ll be surprised. That’s how badly I want this for her - for us.
But this summer will end with a fabulous bang when we attend the CWD - FFL Conference in Vancouver! As a family we are excited about this event. But individually, our reasons for being excited are varied.
Jenna asked me if they’ll have a bouncy castle there like at the JDRF Walk To Cure Diabetes. I told her I’m not sure but I bet the hotel will have a pool. Her eyes widened to saucer proportions and her hands clapped together excitedly.
That’s all she needed to hear. She’s in.